RSS

Tag Archives: cancer

Leaving

It is possible there is a perfect time to die. A time when the stories told of you would be of kind compassion and rambunctious joy. Those are the times. When you are filled with love.

Not when you are alone. Not when you are filled with despair. A time when people think of you and smile, not shake their heads and ask why. Not too late when you have been lingering. But when you are active and happy. Die dancing. Die walking the beach. Not in front of a TV.

But most people don’t get to pick their time, it seems to me. And those who do often pick the time of despair and loneliness, leaving more despair behind them.

The perfect time would not have been the time that I picked. And, realizing it in time, pulled back. No, that was two weeks too early. The prefect time would have been as I lay on my wife’s body, having just heard her last heartbeat and felt her chest fall with her last breath. That would have been the time. Hearts and minds. My broken heart for her broken brain.

That would have been understandable. That would have been beyond reproach. Something worthy of writing about.

When people ask me how I am doing, I say I am ”integrating.” I can’t take credit for that. Unena said that. Right after she beat me at a word game. She is one of the people who saw me disintegrate, fall apart, helped keep me alive, gave me reasons, motivations for staying, put me back together, kept me together. She knows. I know. There is no healing. No moving on. None of that. It is integration. Synthesis. She is correct.

Leaving. It causes such pain. Such emptiness as can be understood only by those who experience it. And then, each relationship, each love, feels different. Yet  we do reintegrate.

And so, now, there are moments of joy. Much of it, actually. There is laughter and love. So much love. So many reasons to be here. Yet, I can’t help but feel my reason for being has passed. Come and gone. And it is just now a game of waiting.

I haven’t written much since then. I try but there is nothing there. So there is that. I started writing about the last year, the discovery and treatment and loss, assistance, love, frustration and loss, but got bogged down, torn up. So I set it aside. I am not ready yet. I might never be.

I have lost so much of my drive. My get-it-done-yesterday-ness. I walk. I exercise. I ride my bike. Sing. Play my ukulele. I actually watch some TV which is new for me. I am contemplating fishing. I actually bought the lures and hooks and I got a pole at a garage sale. There are six-pound bass a hundred feet from my house, so, hey, why not? I am relaxing for the first time in, well, I am not sure. But it is new to me.

My ambition? Studying for the GRE seems silly. Maybe it was an ego thing. I can imagine myself with my PhD and still just wanting to find the time to write. So that must be what I should do. Which makes not being able to write at the moment feel particularly distressing.

My ambition? What to do? Why? The only reason to stay is for the joy one can create in our own lives and the lives of others.  To enjoy the ride. To see our loved ones happy. To love. To bring love. To be loved. Getting things done is secondary. Only as much as it allows time and energy to love the people around me.

It is cliché to say we could all be dead tomorrow. But it is also true. The idea that we live on is delusional. It is a functional delusion. One I no longer have. So I want to treat people like, when I see them, it could be the last time. Tell them I love them before they go because it might be the last time. Deny no impulse to charity, no matter how small or large, because why not give what I have. And why not sit and watch the fish?  And play with my granddaughter. Why not? I could not be here tomorrow.

And any time would do. Today. Tomorrow. A week from now. Ten or fifty years. One day or the next. Dying any day is still dying and I will still live up to that day. Because you never know.

Lee didn’t. I didn’t. And look now.

All is well with the people I love. Or at least all is static. Some have grown so they can move on without help. Some thrive. But all are getting along without Lee. Even me.  And so, what of the stories of the devastation left by a death.  Pain, suffering, sure. But devastation?

I was told how horrible it would be if I died. The suffering it would cause. The pain. The ongoing emotional trauma. But, if I left now, my book would still come out. My son would still buy his house. My daughter will still be in medical school. My friends will still work day to day, care for their children, plant their gardens. They will reintegrate.

Maybe they said that because suicide is different than an accident or disease. Truly, I am not sure. But the thoughts I go to bed with, the love and joy, that would be gone. But so too would the day-to-day cares. IRS, money owed, fixing the car, all those things. Rebuilding the business, eating right. All gone.  Personal needs and drives. Gone. Gone the joy and delight in their satisfaction but so too their frustration.

Loneliness. Gone.

And I know now people would reintegrate. And go on. The only thing missing is that perfect moment. It passed. It passed. And I am still here.

 

Tags: , , , , , ,

Peek-a-boo

I dislike people asking me how I am. Generally, I am well. Or some version of well, depending on varying definitions. But being unwell has never got me anywhere so I see no point in it.

My doctor once complained to me that people complain too much about common ailments when they should just accept the body is imperfect and live their lives instead of whining so much. Sure, get checked out and stay as healthy as possible. And quit bitching. Then she looked at me and said, “if anyone has a right to complain, it is you. If people knew what you deal with, they’d shut up.” True, maybe. But I don’t think so. People like to complain. Some like to be miserable. Misery makes them happy.

Most of the people I see on a regular basis know not to ask me how I am unless they mean it. I don’t mean friends. I mean people I see but don’t know well. Cashiers, postal workers, bank tellers. We are always friendly. I am not the stuck-up, elitist, aloof snot many people think I am. I just don’t do smalltalk and pleasantries.

For instance, at my local grocery store, most of the people don’t ask me how I am doing. I even come in on occasion with my service-vested dog. Then they know I am not doing as well as I might like. Or that Dusty just wanted an outing.

Cashiers ask everyone how they are doing. They also always ask me if I found everything I was looking for. That is a habit I can’t seem to break them of. But asking me how I am doing is something most no longer do.

They used to. And I would answer with a question. “Is that a pro-forma question or are you genuinely interested in the state of my health and general tenor of my life? Because if you are, I will tell you. If you are not, please don’t ask.” They usually answer honestly that it is just the thing to say and we generally go on to have a pleasant financial transaction without the unnecessary interpersonal interaction and personal disingenuousness.

Once, the manager saw me staring at the soup cans. Five minutes later, she walked around again and saw me staring at the soup cans. She asked me if she could help me find something. Well, yes, I said, stunned back to a more shared and active version of reality. “Chicken and rice soup.” If she sees me in the store, she asks now if she can help me find something. It is appreciated. I tell her so. And she knows better than to ask how I am.

The last time I bought chicken and rice soup was for my wife, Lee, She of blessed name, as my not-too-distant ancestors would say. The manager had to help me find it among the other shelves and rows of cans. It was something she craved when she had brain cancer. Funny, somehow, doing such ordinary things for someone so extraordinary. For someone soon to be gone. The sacred in the mundane.

One late night, I left the hospital. It was April. Or May. Don’t ask me much about time in the seven or nine month period. I went to Publix late. It was nearly closing. Or I got in just before and it was after closing. I had four items. One might have been a vegetable sub on whole wheat bread. It might have been a cookie and fried chicken. On some of those hospital nights I went for comfort food, letting myself off easy. I would have had three items, but off the discount shelf was a bottle of Jack and Coke for a buck ten. And why not?

I don’t drink. Well, barely. I don’t want not to feel. And I didn’t want to deaden anything of what I was feeling. Folks tried to get me to take something to sleep. A tranquilizer. No need to feel it all the time, they would tell me. No. I never wanted to not feel the hurt, the pain, the agony. The impending loss. The emptiness, helplessness, uselessness. I didn’t want to, don’t want to deaden or dampen, even temporarily, anything to do with Lee. But this night, drink and the new episode of Justified would do just fine. Seriously, what is better to drink with a Kentucky crime drama than a bottled bourbon and Coke?

I got to the check-out. A tall, young fellow was behind the counter. I put my items and one cloth bag on the belt.

“How are you?”

Oh, no… not on this, one of the worst of all nights. “Is that a pro-forma question or are you genuinely interested in the state of my health and general tenor of my life? Because if you are, I will tell you. If you are not, please don’t ask.” I have it down, you see.

He laughed. “No, seriously, how are you this evening?”

He seemed like a nice kid. I thought I’d let him off easily. “Seriously, you don’t want to ask that question tonight.”

“Things a little rough, huh?”

Ok, I’m getting annoyed. “I’m giving you an out, you know. A free pass. Seriously, please stop asking.”

He looks at me a little funny. That’s ok. If it gets me my four items and I get to go home for a few hours before heading back to the hospital, then he can look at me any way he wants. The last few nights I slept in the hospital in a chair next to her. I feel wrecked. I must look wrecked because she was worried about me and sent me home to sleep. I just want a few hours in my bed. Food, a little TV, bed.

Three items rung up. He picks up the Jack and Coke, hesitates before sliding it over the scanner. Then looks at the label a bit closer.

“Well, this’ll make it better.”

I had it. Tired. Late. Hungry. Wrecked and worse, really didn’t want to leave my wife in the hospital and have my, first?, maybe my first, night alone in the house. Maybe, certainly, one of many to come. One of a life-time of nights alone to come where she isn’t with me. After thirty years, not with me. Considering this, I think I handled myself well. I think I was nice. Really.

“No, I am pretty sure that will not make it better. I am pretty sure, whether I drink that or not, my wife will still die of brain cancer. And a little Jack and Coke won’t make that better. But it might make it so I can sleep tonight.”

He lost a bit of color in his face. His smile dropped. The jocularity disappeared. He just looked at me. And, slowly, said, “Sorry.” One word. And put the bottle in the bag.

“I gave you an out. I asked you not to ask.”

“Yes, you did.”

I hand him a twenty. He hands me change. I leave.

Some number of day later I am, again, checking out of Publix.

”How are you today?”

“Let me ask you a question. When you ask that, you don’t really want to know, right? I mean, you don’t really want each person, all day, to tell you how they are really doing, do you? Aren’t you just saying hello? Really, isn’t it just a more formal way of saying hello? Or saying, I see you. I recognize your presence here is important to me. Isn’t it more that?”

She stares at me.

I stare at her. And say, “Peek-a-boo.”

She blinks and smiles. Shakes her head slowly. Scans my items.

It is sort of like saying “namaste.” Translated loosely, it means “The divine in me recognizes the divine in you.” I see you there. My spark of the divine sees the same in you. And here we are, together.

Alan Watts used to talk about God playing Hide and Seek with itself. The divine breaks itself up into all these people to experience the thrill of finding itself again, anew, in all these bodies, aspects, places, ways. A game of fun and discovery. Watts used to drink quite a bit.

Very much like a game of Peek-a-boo. God hides from itself. Sees itself, is surprised, blinks. Smiles. Says, “There I am!” and goes off to do it again. Next. Next. Who will I see myself in next?

Peek-a-boo.

 
1 Comment

Posted by on March 22, 2012 in Culture, philosophy, Religion, Social

 

Tags: , , , , ,

Ashes

I still go to call you.
When the door opens
Rise, run to greet you.
So I took your number from the phone
and now look for it.
I lock the door,
So it won’t open unbidden
Expecting to see you.

We tossed your ashes to the river.
I stood downwind,
Poured them into my hand,
Threw them high.
They flecked across the moon,
They mixed with the new grey in my hair,
Covered my face.
I took a breath
Deep.
Your ashes
Taste of salt.

 
1 Comment

Posted by on September 14, 2011 in Family, Poetry, Religion, Social

 

Tags: , , , , , , ,

Judy

Judy is now
In her forties she works a bit
In a shop full of silk from Bali
Bags from a Women’s collective in Southern Mexico,
Incense
Gum carefully liberated from trees
Who, I’m sure, happily gave it up
Knowing just how trendy it would be.

I saw her again after so many years
Said hello, was greeted in a way
That left me feeling emptied,
But I didn’t say anything about that,
I just asked her how she was.

Her voice now cracks, gurgles, croaks
The effect on her of too many cigarettes
But that’s ok, says Judy.

The more we smoke the fewer people
She explains, smoking is a way to eradicate
The plague she calls human beings.
One fewer person, she explains
Is good for the Earth,
Even if that person is her.

And I don’t mention the greater drain
The ill are to the world
Or the damage tobacco crops do
To the land, the waters, and, ultimately
To Judy.

We use to sit, she and I,
Naked in the water,
A lake or a pond,
Sometimes a puddle would do,
Staring up at the reflected blue
Or at a moon whose bright opal
Set our bodies glowing in effusive glory
Against the background of the darker sky.

Long hours we sat,
Planning our next action
In defense of that which could not defend itself.
What would not get built on our watch,
Who sits in the tree this week,
Where the fence was weakest,
How to fight is won
By the compassionate warrior
Fierce and joyous.

We would look at the moon and she would howl
As I stood mute, in thought.
Now, the howl sits bound in her throat,
Unable to escape
Through the dark-matter mass grown of
Her loathing for herself,
The hatred for her species.

 
2 Comments

Posted by on May 31, 2011 in Culture, Gainesville, philosophy, Poetry, Social

 

Tags: , ,

 
%d bloggers like this: